Cross Country Chaos
It's been a while since I last blogged, and so much has happened that I barely know where to start.
I ended my job, moved back to the East Coast, and accepted a new pediatric physical therapy job that I have yet to start. I road tripped cross country in 11 days with my husband, with the opportunity to stop and experience some of the breathtaking sights this country has to offer. We rode a cable car overlooking Lake Tahoe, hiked up to a glacier at Glacier National Park, witnessed Old Faithful at Yellowstone National Park, oohed and ahhed at giant, jagged mountains in Grand Teton National Park, said hello to Crazy Horse and some important old white men at Mount Rushmore, spotted big-horned sheep at Badlands National park, took selfies with The Bean in Chicago, and eventually made our way to our new home.
Moving to a new state with complex medical conditions means beginning the search for doctors all over again. Fortunately, I am able to continue meeting with my nutritionist via phone, but every other specialty required starting over. With the help of a local EDS support group on Facebook, I was able to begin scheduling appointments before even moving. By the time I made it to my new home, I had already set up my new rheumatologist, PT, cardiologist (more on that coming up), and geneticist (though the first available appointment when I called in August was for January 2019!).
My rheumatologist is very familiar with EDS, and confirmed my first rheumatologist's diagnosis of hypermobile Ehlers-Danlos Syndrome. He is having me follow up with an echocardiogram, a GI specialist, and an allergist familiar with EDS and mast cell disorders, since we are still trying to get a handle on some of my symptoms. My new physical therapist is the local PT hypermobility specialist, and is incredibly knowledgeable about EDS and its ramifications. The cardiologist is a specialist in dysautonomia, and as a result sees many patients with EDS and hypermobility spectrum disorder (HSD).
So far, I am feeling very optimistic about my healthcare with this move back East. In the past month since moving in, I already feel that the care I am getting is better and more thorough than the care I received over the course of two full years in LA (with the exception of my amazing LA rheumatologist). Let's hope this trend of knowledgeable healthcare providers continues!
I ended my job, moved back to the East Coast, and accepted a new pediatric physical therapy job that I have yet to start. I road tripped cross country in 11 days with my husband, with the opportunity to stop and experience some of the breathtaking sights this country has to offer. We rode a cable car overlooking Lake Tahoe, hiked up to a glacier at Glacier National Park, witnessed Old Faithful at Yellowstone National Park, oohed and ahhed at giant, jagged mountains in Grand Teton National Park, said hello to Crazy Horse and some important old white men at Mount Rushmore, spotted big-horned sheep at Badlands National park, took selfies with The Bean in Chicago, and eventually made our way to our new home.
Moving to a new state with complex medical conditions means beginning the search for doctors all over again. Fortunately, I am able to continue meeting with my nutritionist via phone, but every other specialty required starting over. With the help of a local EDS support group on Facebook, I was able to begin scheduling appointments before even moving. By the time I made it to my new home, I had already set up my new rheumatologist, PT, cardiologist (more on that coming up), and geneticist (though the first available appointment when I called in August was for January 2019!).
My rheumatologist is very familiar with EDS, and confirmed my first rheumatologist's diagnosis of hypermobile Ehlers-Danlos Syndrome. He is having me follow up with an echocardiogram, a GI specialist, and an allergist familiar with EDS and mast cell disorders, since we are still trying to get a handle on some of my symptoms. My new physical therapist is the local PT hypermobility specialist, and is incredibly knowledgeable about EDS and its ramifications. The cardiologist is a specialist in dysautonomia, and as a result sees many patients with EDS and hypermobility spectrum disorder (HSD).
So far, I am feeling very optimistic about my healthcare with this move back East. In the past month since moving in, I already feel that the care I am getting is better and more thorough than the care I received over the course of two full years in LA (with the exception of my amazing LA rheumatologist). Let's hope this trend of knowledgeable healthcare providers continues!
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